My Experience of Intermittent Self Catheterisation

September is Urology Awareness Month and is a good opportunity to raise awareness of bladder conditions. My bladder issues started a year after I was diagnosed with endometriosis. I was not aware that endometriosis can affect the bladder, it is not just a reproductive condition, but a condition that can affect the whole body. I had two separate occasions when my bladder went into full retention which is when you are unable to pass urine. I had to go to hospital and have an indwelling catheter inserted for a few weeks before I was given an appointment for a trial without catheter in the urology clinic.

I remember speaking with a Urogynaecology Nurse Specialist in a clinic, she did a bladder scan, an ultrasound scan that focuses on the bladder and urinary tract, which showed that despite going to the toilet naturally to pass urine I still had quite a lot of urine still in my bladder. The nurse spoke to me about learning how to do intermittent self catheterisation (ISC) which at first, I felt nervous about, but I was told that it was ok to feel this way. The nurse made me feel at ease and explained each step clearly. She showed me two different catheters that I could try one was longer in length and the other was smaller and more discreet. I found that using a mirror was helpful when inserting the catheter (although not everyone does) as I was able to see what I was doing, and it helped me insert the catheter on the first try. I felt well supported when I was learning how to self catheterise and I was given the long and short catheter to try and see which one I was more comfortable with.

I wanted to share 4 of the things that I found helpful at the start of my ISC journey:

1. It can be helpful to get a small bag which has your supplies for ISC inside. My small bag consists of catheters, wipes, small mirror, disposable bags, and some alcohol gel.
2. I found using a slightly bigger mirror helpful at first when I was in the house but when I was out the smaller one, I could use, and I was able to carry it in my bag.
3. Stay in contact with your Urology Nurse or Urogynaecology Nurse Specialist especially as you adjust to learning how to do ISC and do not be afraid to reach out to them for support or if you have any questions.
4. Give yourself time when doing ISC as I found that the more relaxed you are the easier it is to insert the catheter.

I hope this blog has helped and please know that it is okay to ask your Urology Nurse or Urogynaecology Nurse Specialist for support if you are finding it tough. Sending love.

Dionne x